The Immortal Life of Henrietta Lacks is a riveting account of a life that combines elements of racial issues, medicine and medical ethics as well as questions about the meaning of immortality and a family struggling to understand their mother's legacy.
Unbeknownst to her, Henrietta Lacks (1920-1951) changed the world through her contributions to biomedical research. Lacks was a poor African-American woman who was treated at Johns Hopkins Hospital beginning in 1951 for cervical cancer. She died that same year, but prior to her death her doctor removed two samples of Henrietta's cervix, a healthy part and a cancerous part, without her permission or even her knowledge.
Her doctor gave the cells to Dr. George Otto Gey, a biomedical researcher. These cells eventually became the HeLa (Henrietta Lacks) Immortal cell line. Prior to the use of Lacks' cells, cell lines used for research would die out within a few days and had to continuously be replaced. Henrietta Lacks' cells were the first that scientists could keep alive and grow. The HeLa cells are the most commonly used cells in research, and are still being used today.
According to author Rebecca Skloot, Henrietta Lacks' cells were vital to the development of the polio vaccine, cloning, gene mapping and in vitro fertilization. Her cells have been bought and sold millions of times the world over, and yet her children remain in poverty and cannot afford health insurance.
Skloot learned about the HeLa cells in a high school science class and her interest was piqued. After completing college, she spent the next decade researching Henrietta Lacks and in the process became close to the surviving members of the Lacks family, particularly Henrietta's eldest daughter, Deborah. The Lacks family remained impoverished and uneducated, and had trouble understanding the meaning of their mother's immortality, while also feeling that the doctors had stolen from them, in more ways than one.
Rebecca Skloot has a B.S. in biological sciences and an MFA in creative nonfiction. She has taught creative writing and science journalism at the University of Memphis, the University of Pittsburgh, and New York University, and has been published in several scientific journals and mainstream magazines. The Immortal Life of Henrietta Lacks is her first book, has won several awards and has been on the New York Times Best Seller List for two years. In 2011, the book won the Audie Award for Best Non-Fiction Audiobook.
"Fascinating book about the woman who made it possible for scientists to study the behavior of cancer cells and find treatments for common and not so common illnesses. Rebecca Skloot takes us into this woman's life through her children, her doctors, and the institutions and mindsets of a generation long past. She makes it easy to follow the back and forth of the story with a timeline at the beginning of each chapter. I found this book to be interesting, heart breaking, uplifting, and educational. It's a bit of a look at the best, and worst, of mankind. If you enjoyed it I'd recommend "The Emperor of All Maladies" by Siddhartha Mukherjee."
— Dee (5 out of 5 stars)
#1 NEW YORK TIMES BESTSELLER • “The story of modern medicine and bioethics—and, indeed, race relations—is refracted beautifully, and movingly.”—Entertainment Weekly
NOW A MAJOR MOTION PICTURE FROM HBO® STARRING OPRAH WINFREY AND ROSE BYRNE • ONE OF THE “MOST INFLUENTIAL” (CNN), “DEFINING” (LITHUB), AND “BEST” (THE PHILADELPHIA INQUIRER) BOOKS OF THE DECADE • ONE OF ESSENCE’S 50 MOST IMPACTFUL BLACK BOOKS OF THE PAST 50 YEARS • WINNER OF THE CHICAGO TRIBUNE HEARTLAND PRIZE FOR NONFICTION
NAMED ONE OF THE BEST BOOKS OF THE YEAR BY The New York Times Book Review • Entertainment Weekly • O: The Oprah Magazine • NPR • Financial Times • New York • Independent (U.K.) • Times (U.K.) • Publishers Weekly • Library Journal • Kirkus Reviews • Booklist • Globe and Mail
Her name was Henrietta Lacks, but scientists know her as HeLa. She was a poor Southern tobacco farmer who worked the same land as her slave ancestors, yet her cells—taken without her knowledge—became one of the most important tools in medicine: The first “immortal” human cells grown in culture, which are still alive today, though she has been dead for more than sixty years. HeLa cells were vital for developing the polio vaccine; uncovered secrets of cancer, viruses, and the atom bomb’s effects; helped lead to important advances like in vitro fertilization, cloning, and gene mapping; and have been bought and sold by the billions.
Yet Henrietta Lacks remains virtually unknown, buried in an unmarked grave.
Henrietta’s family did not learn of her “immortality” until more than twenty years after her death, when scientists investigating HeLa began using her husband and children in research without informed consent. And though the cells had launched a multimillion-dollar industry that sells human biological materials, her family never saw any of the profits. As Rebecca Skloot so brilliantly shows, the story of the Lacks family—past and present—is inextricably connected to the dark history of experimentation on African Americans, the birth of bioethics, and the legal battles over whether we control the stuff we are made of.
Over the decade it took to uncover this story, Rebecca became enmeshed in the lives of the Lacks family—especially Henrietta’s daughter Deborah. Deborah was consumed with questions: Had scientists cloned her mother? Had they killed her to harvest her cells? And if her mother was so important to medicine, why couldn’t her children afford health insurance?
Intimate in feeling, astonishing in scope, and impossible to put down, The Immortal Life of Henrietta Lacks captures the beauty and drama of scientific discovery, as well as its human consequences.
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“[A] multilayered narrative of race, class, and family.”
— O, The Oprah Magazine“The story of modern medicine and bioethics—and, indeed, race relations—is refracted beautifully and movingly.”
— Entertainment Weekly“Skloot’s engaging, suspenseful book is an incredibly welcome addition for non-science wonks.”
— Newsweek“The fine narration underscores the pain and frustration her family feels after Lacks’ death, the purloining of her cells, and the world’s failure to recognize her role. However difficult it is to acknowledge unscrupulous medical experimentation, Campbell’s star quality rivets listeners to this tribute to one whose life continues to improve health care worldwide. A 2011 Audie Award Winner.”
— AudioFile“This extraordinary account shows us that miracle workers, believers, and con artists populate hospitals as well as churches, and that even a science writer may find herself playing a central role in someone else’s mythology.”
— New Yorker“Science writing is often just about ‘the facts.’ Skloot’s book, her first, is far deeper, braver, and more wonderful.”
— New York Times Book Review“More than ten years in the making, it feels like the book Ms. Skloot was born to write.”
— New York Times“A work of both heart and mind, driven by the author’s passion for the story, which is as endlessly renewable as HeLa cells.”
— Los Angeles Times“One of the great medical biographies of our time.”
— Financial Times (London)“A deftly crafted investigation of a social wrong committed by the medical establishment, as well as the scientific and medical miracles to which it led.”
— Washington Post“Riveting…a tour-de-force debut.”
— Chicago Sun-Times“Above all it is a human story of redemption for a family, torn by loss, and for a writer with a vision that would not let go.”
— Boston Globe“Beautifully crafted and painstakingly researched.”
— Science“Extraordinary.”
— Telegraph (London)“No dead woman has done more for the living…a fascinating, harrowing, necessary book.”
— Guardian (London)“A real-life detective story, The Immortal Life of Henrietta Lacks probes deeply into racial and ethical issues in medicine…The emotional impact of Skloot’s tale is intensified by its skillfully orchestrated counterpoint between two worlds.”
— Nature“Indelible…The Immortal Life of Henrietta Lacks is a heroic work of cultural and medical journalism.”
— Salon.com“The Immortal Life of Henrietta Lacks is a triumph of science writing...one of the best nonfiction books I have ever read.”
— Wired.com“Moving.”
— Economist“Skloot is a terrific popularizer of medical science, guiding readers through this dense material with a light and entertaining touch.”
— Globe and Mail (Toronto)“Blows away the notion that science writing must be the literary equivalent to Ambien.”
— Chicago Tribune“[A] remarkable and moving book…a vivid portrait of Lacks that should be as abiding as her cells.”
— Times (London)“A stunning book…surely the definitive work on the subject.”
— Independent (London)“[A] remarkable book.”
— London Review of Books“Seldom do you read a book that is science, social history, and a page turner.”
— British Medical Journal“An inspiring tale for all ages.”
— Essence“A remarkable feat of investigative journalism and a moving work of narrative nonfiction that reads with the vividness and urgency of fiction.”
— NPR“As much an act of justice as one of journalism.”
— Seattle Times“An indelible, marvelous story as powerful as those cells.”
— Philadelphia Inquirer“Brings the Lacks family alive…[and] gives Henrietta Lacks another kind of immortality—this one through the discipline of good writing.”
— Baltimore SunOne of the most graceful and moving nonfiction books I’ve read in a very long time . . . The Immortal Life of Henrietta Lacks . . . floods over you like a narrative dam break, as if someone had managed to distill and purify the more addictive qualities of Erin Brockovich, Midnight in the Garden of Good and Evil and The Andromeda Strain. . . . It feels like the book Ms. Skloot was born to write. It signals the arrival of a raw but quite real talent.
— Dwight Garner, The New York TimesSkloot's vivid account begins with the life of Henrietta Lacks, who comes fully alive on the page. . . . Immortal Life reads like a novel.
— Eric Roston, The Washington Post“Gripping . . . by turns heartbreaking, funny and unsettling . . . raises troubling questions about the way Mrs. Lacks and her family were treated by researchers and about whether patients should control or have financial claims on tissue removed from their bodies.
— Denise Grady, The New York TimesThe Immortal Life of Henrietta Lacks is a fascinating read and a ringing success. It is a well-written, carefully-researched, complex saga of medical research, bioethics, and race in America. Above all it is a human story of redemption for a family, torn by loss, and for a writer with a vision that would not let go.
— Douglas Whynott, The Boston GlobeRiveting . . . raises important questions about medical ethics . . . It's an amazing story. . . . Deeply chilling . . . Whether those uncountable HeLa cells are a miracle or a violation, Skloot tells their fascinating story at last with skill, insight and compassion.
— Colette Bancroft, St. Petersburg TimesThe history of HeLa is a rare and powerful combination of race, class, gender, medicine, bioethics, and intellectual property; far more rare is the writer than can so clearly fuse those disparate threads into a personal story so rich and compelling. Rebecca Skloot has crafted a unique piece of science journalism that is impossible to put down—or to forget.
— Seed magazineNo one can say exactly where Henrietta Lacks is buried: during the many years Rebecca Skloot spent working on this book, even Lacks’s hometown of Clover, Virginia, disappeared. But that did not stop Skloot in her quest to exhume, and resurrect, the story of her heroine and her family. What this important, invigorating book lays bare is how easily science can do wrong, especially to the poor. The issues evoked here are giant: who owns our bodies, the use and misuse of medical authority, the unhealed wounds of slavery ... and Skloot, with clarity and compassion, helps us take the long view. This is exactly the sort of story that books were made to tell—thorough, detailed, quietly passionate, and full of revelation.
— TED CONOVER, author of Newjack and The Routes of ManIt’s extremely rare when a reporter’s passion finds its match in a story. Rarer still when the people in that story courageously join that reporter in the search for what we most need to know about ourselves. When this occurs with a moral journalist who is also a true writer, a human being with a heart capable of holding all of life’s damage and joy, the stars have aligned. This is an extraordinary gift of a book, beautiful and devastating—a work of outstanding literary reportage. Read it! It’s the best you will find in many many years.
— ADRIAN NICOLE LEBLANC, author of Random Family”The Immortal Life of Henrietta Lacks brings to mind the work of Philip K. Dick and Edgar Allan Poe. But this tale is true. Rebecca Skloot explores the racism and greed, the idealism and faith in science that helped to save thousands of lives but nearly destroyed a family. This is an extraordinary book, haunting and beautifully told.
— ERIC SCHLOSSER, author of Fast Food NationSkloot’s book is wonderful -- deeply felt, gracefully written, sharply reported. It is a story about science but, much more, about life.
— SUSAN ORLEAN, author of The Orchid ThiefThis is a science biography like the world has never seen. What if one of the great American women of modern science and medicine--whose contribution underlay historic discoveries in genetics, the treatment and prevention of disease, reproduction, and the unraveling of the human genome--was a self-effacing African-American tobacco farmer from the Deep South? A devoted mother of five who was escorted briskly to the Jim Crow section of Johns Hopkins for her cancer treatments? What if the untold millions of scientists, doctors, and patients enriched and healed by her gift never, to this day, knew her name? What if her contribution was made without her knowledge or permission? Ladies and gentlemen, meet Henrietta Lacks. Chances are, at the level of your DNA, your inoculations, your physical health and microscopic well-being, you’ve already been introduced.
— Melissa Fay Greene, author of Praying for Sheetrock and There Is No Me Without YouHeartbreaking and powerful, unsettling yet compelling, The Immortal Life of Henrietta Lacks is a richly textured story of the hidden costs of scientific progress. Deftly weaving together history, journalism and biography, Rebecca Skloot?s sensitive account tells of the enduring, deeply personal sacrifice of this African American woman and her family and, at long last, restores a human face to the cell line that propelled 20th century biomedicine. A stunning illustration of how race, gender and disease intersect to produce a unique form of social vulnerability, this is a poignant, necessary and brilliant book.
— Alondra Nelson, Columbia University; editor of Technicolor: Race, Technology and Everyday LifeRebecca Skloot has written a marvelous book so original that it defies easy description. She traces the surreal journey that a tiny patch of cells belonging to Henrietta Lacks’s body took to the forefront of science. At the same time, she tells the story of Lacks and her family—wrestling the storms of the late twentieth century in America—with rich detail, wit, and humanity. The more we read, the more we realize that these are not two separate stories, but one tapestry. It’s part The Wire, part The Lives of the Cell, and all fascinating.
— Carl Zimmer, author of MicrocosmIf virtues could be cultured like cells, Rebecca Skloot’s would be a fine place to start¾a rare combination of compassion, courage, wisdom, and intelligence. This book is extraordinary. As a writer and a human being, Skloot stands way, way out there ahead of the pack.
— MARY ROACH, author of Stiff and BonkThe Immortal Life of Henrietta Lacks takes the reader on a remarkable journey—compassionate, troubling, funny, smart—and irresistible. Along the way, Rebecca Skloot will change the way you see medical science and lead you to wonder who we should value more—the researcher or the research subject? Ethically fascinating and completely engaging—I couldn’t recommend it more.
— DEBORAH BLUM, author of The Poisoner’s Handbook and The Monkey Wars and the Helen Firstbrook Franklin professor of journalism at the University of Wisconsin-MadisonThis remarkable story of how the cervical cells of the late Henrietta Lacks, a poor black woman, enabled subsequent discoveries from the polio vaccine to in vitro fertilization is extraordinary in itself; the added portrayal of Lacks's full life makes the story come alive with her humanity and the palpable relationship between race, science, and exploitation.—PAULA J. GIDDINGS, author of Ida, A Sword Among Lions; Elizabeth A. Woodson 1922 Professor, Afro-American Studies, Smith College
Rebecca Skloot’s steadfast commitment to illuminating the life and contribution of Henrietta Lacks, one of the many vulnerable subjects used for scientific advancement, and the subsequent impact on her family is a testament to the power of solid investigative journalism. Her deeply compelling account of one family’s long and troubled relationship with America’s vast medical-industrial complex is sure to become a cherished classic.
— ALLEN M. HORNBLUM, author of Acres of Skin and Sentenced to ScienceWriting with a novelist’s artistry, a biologist’s expertise, and the zeal of an investigative reporter, Skloot tells a truly astonishing story of racism and poverty, science and conscience, spirituality and family driven by a galvanizing inquiry into the sanctity of the body and the very nature of the life force.
— Booklist (starred review)Science journalist Skloot makes a remarkable debut with this multilayered story about ‘faith, science, journalism, and grace.’…Recalls Adrian Nicole LeBlanc’s Random Family…A rich, resonant tale of modern science, the wonders it can perform and how easily it can exploit society’s most vulnerable people.
— Publishers Weekly (starred review)" This book is absolutely fascinating! Rebecca Skloot does a wonderful job of telling the story of HeLa cells and it is so hard to believe that the family of Henrietta Lacks was so poor they couldn't afford medical care for themselves, given how much money no doubt was made from their mother's cells. I couldn't wait to see where this story would take the reader. Kudos to Skloot for telling this story. Science and the medical field owes a huge debt of gratitude to the Lacks family for the contributions these cells have made to science. "
— Julie, 7/29/2019" I think this could have been better with more character development and less medical history. The significance and use of Henrietta's cells is addressed over and over, while the family story is presented in bits and pieces. "
— Jloanmom, 2/14/2014" I found the information in this book fascinating. I had heard of HeLa cells but had absolutely no idea about the back story. "
— Polly, 2/4/2014" I loved this book. I thought it was well written and reads like fiction, but is non-fiction. It raised so many issues and I found it intriguing. This is one I would love to add to my personal library. "
— Janey, 2/4/2014" WOW! This book is a must read about a lady (Heneretta Lacks) whose cells were taken from her without her knowledge in 1951 and used for medical research resulting in the saving of thousands of lives over the years. Even though billions of her cells have been bought and sold neither her nor her family were ever compensated and in fact her family still cannot afford health insurance. "
— Everet, 2/3/2014" The Lacks family shares a lot with all; we just don't know where are cells are. They are so not alone. "
— Gloria, 1/20/2014" This was such an interesting and informative read. It is the true story of a poor, southern, black woman who went for treatment at John Hopkins for cervical cancer. Since she was treated before informed consent, she became an unwitting donor of these blood cells, better known as HeLa cells. These cells have had a major impact on mankind and the advancement of medicine, and continue to do so. Althouh, HeLa cells are still alive today, Henrietta remains virtually unknown. This books tells her story. "
— Debbie, 1/2/2014" This was interesting but hard to follow a good bit of the time. It's an amazing account though! "
— Susan, 1/1/2014" Really good nonfiction that draws you in, especially after the first half. I found it fascinating because I've heard of HeLa cells for decades - probably since I started studying biology in college, but I never knew anything about the woman or the family behind the cells. Rebecca Skloot put a decade's worth of research and writing into this compelling story. "
— Bonney, 12/26/2013" This is a really interesting journalistic endeavour. The writing is very good and the book covers medical science, black history and sociology. As if the characters weren't compelling enough, the author's own sensibilities creep into the story, which makes it even more vivid. "
— Karen, 12/25/2013" Completely fascinating book. "
— Bette, 12/24/2013" One of the most fascinating, heartbreaking and eye-opening books I've ever read. Everyone should read this. "
— Katie, 12/20/2013" Fantastic read! Informative and yet very lyrical. Science bound by human story, most telling of effects progress brings in its wake. "
— Irina, 12/20/2013" Very well written and amazing true story. "
— Anna, 12/16/2013" Very interesting that this happened in my lifetime but I had no knowledge of it. Fascinating that the life of one person could result in so much good for so many. "
— Patricia, 12/2/2013" So glad I read this book. Skloot had a lot of patience to put together so much information. Raises questions of ethics that will be discussed for decades. "
— Kathyleistner, 11/25/2013" Fascinating! Definitely brought up much to contemplate in the way of science and ethics. A very compelling story I couldn't put down! "
— Jaclyn, 11/4/2013" Loved this! A complex, interesting story that I was surprised to finish. "
— Lorrie, 9/30/2013" To me, this book is the perfect example of what science writing should be: understandable to a non-scientist but actually scientific. Factual, but creative. I thought this was one of the most touching books I'd ever read. "
— Leata, 9/24/2013" Very interesting read! It is a nonfiction but reads like a novel. You really feel for the characters and the family. I learned a lot about cells and cancer. Nothing scares me more! "
— Kira, 8/19/2013" Seldom have I read a book that was more thought provoking. The ethical questions surrounding cellular research and the rights of the "donors" of the tissues (and their families) involved is a slippery slope with no clear solutions. "
— Annette, 6/9/2013" Thoroughly enjoyed and nicely written. You sympathize for the Lacks family as well as appreciate all the scientific advances made possible because of the HeLa cells. I recommend this book to anyone interested in science or health professions. "
— Rob, 5/19/2013" I would have given it a higher rating, but the Deborah character was way too paranoid. "
— Mark, 3/8/2013" Very interesting book. Really presented an ethical dilemma. "
— Deana, 12/4/2012" I had no idea--very eye-opening regarding past (and some still current) medical practices. The story is told in such a way as to make the science info involved accessible even to those of us who are not as strong in that area. "
— Candy, 9/5/2012" Barbaric cervical cancer treatments and how we came to have our current cell line. Fascinating scientific read with a heart "
— Diana, 7/10/2012" Not my usual genre, but read on a recommendation from a friend. Really liked the book, and it is an amazing story. Not a happy story, but very well done. "
— Kristen, 10/23/2011" Loved the history and science. Obviously well researched. It was hard to find the family likeable even though I felt a lot of compassion for their situation. In the end, the cells belong to the science and the science belongs to the cells. Amazing! "
— Carrie, 9/10/2011" Loved this. Journalistic and compelling. "
— Ruth, 9/7/2011" Well researched and easy to read, even with all the science facts-learned a lot. "
— Judy, 5/25/2011" The medical side of this book was more engaging than the actual people involved. Good history of how views of medicine have changed regarding ownership of "human genes and gene lines". "
— Ann, 5/25/2011" Here is another book I could not put down. What a great tribute to Henrietta Lacks. If you are interested in science, racism, and medical ethics, you should read this book. Even if you are not interested, read this book. It is well researched and well written. "
— Rita, 5/23/2011" So far the book is amazing....I am a little past half the book!!! I would totally suggest this book!!! "
— Patricia, 5/23/2011" Simply amazing. My favorite of the year. "
— Stacey, 5/23/2011" non-fiction at its best! true life really is stranger than fiction. i loved this. "
— carly, 5/22/2011" Fascinating story. Raises a lot of ethical and moral questions. My only complaint is that I felt like it got a little long and in some parts was a bit redundant. "
— Kimberly, 5/22/2011" Amazing book, thanks for the tip Bri "
— Lindsey, 5/22/2011" WOW!! This book is awesome. Great writing, great research, WONDERFUL topic! "
— Heather, 5/21/2011" I loved this book. Read it with my book club and it is a good discussion book and amazing story about Hela cells and where they came from and how they are used. Science is weaved together with the story of Henrietta Lacks and her family. "
— Louise, 5/21/2011Rebecca Skloot is an award-winning science writer whose work has appeared in the New York Times Magazine; O, The Oprah Magazine; Discover; and many others. She is coeditor of The Best American Science Writing 2011 and has worked as a correspondent for NPR’s Radiolab and PBS’s Nova ScienceNOW. She was named one of five surprising leaders of 2010 by the Washington Post. Her debut book, The Immortal Life of Henrietta Lacks, took more than a decade to research and write, and instantly became a New York Times bestseller. It was chosen as a best book of 2010 by more than sixty media outlets, including Entertainment Weekly, People, and the New York Times. Skloot is the founder and president of The Henrietta Lacks Foundation. She has a BS in biological sciences and an MFA in creative nonfiction. She has taught creative writing and science journalism at the University of Memphis, the University of Pittsburgh, and New York University. She currently lives in Chicago.
Cassandra Campbell has won multiple Audie Awards, Earphones Awards, and the prestigious Odyssey Award for narration. She was been named a “Best Voice” by AudioFile magazine and in 2018 was inducted in Audible’s inaugural Narrator Hall of Fame.
Bahni Turpin, winner of numerous AudioFile Earphones Awards and several prestigious Audie Awards for her narrations, was named a “Golden Voice” by AudioFile magazine in 2019. Publishers Weekly magazine named her Narrator of the Year for 2016. She is an ensemble member of the Cornerstone Theater Company in Los Angeles. She has guest starred in many television series, including NYPD Blue, Law & Order, Six Feet Under, Cold Case, What about Brian, and The Comeback. Film credits include Brokedown Palace, Crossroads, and Daughters of the Dust. She is also a member of the recording cast of The Help, which won numerous awards.