Every sixty-nine seconds, someone is diagnosed with Alzheimer's disease. Of the top ten killers, it is the only disease for which there is no cure or treatment. For most people, there is nothing that they can do to fight back. But one family is doing all they can.
The DeMoe family has the most devastating form of the disease that there is: early onset Alzheimer’s, an inherited genetic mutation that causes the disease in 100 percent of cases, and has a 50 percent chance of being passed onto the next generation. Of the six DeMoe children whose father had it, five have inherited the gene; the sixth, Karla, has inherited responsibility for all of them. But rather than give up in the face of such news, the DeMoes have agreed to spend their abbreviated years as part of a worldwide study that could utterly change the landscape of Alzheimer’s research and offers the brightest hope for future treatments—and possibly a cure.
Drawing from several years of in-depth research with this charming and upbeat family, journalist Niki Kapsambelis tells the story of Alzheimer’s through the humanizing lens of these ordinary people made extraordinary by both their terrible circumstances and their bravery.
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“A model of immersion journalism, it is especially notable for its specificity and author Niki Kapsambelis’ empathy. The DeMoes laid bare their lives, and Kapsambelis repays their candor with a warts-and-all portrait softened by fondness and respect.”
— Chicago Tribune
“At its most compelling, The Inheritance is a portrait of the DeMoes’ experience as both Alzheimer’s sufferers and research subjects.”
— Wall Street JournalIn her debut, journalist Kapsambelis builds a compelling narrative about Alzheimer's disease around one North Dakota extended family. . . . An educational and emotional chronicle that should resonate with a wide variety of readers.
— Kirkus Starred Review“In sometimes heartbreaking detail, The Inheritance describes the impact of the disease on individual family members.”
— Pittsburgh Post-GazetteBe the first to write a review about this audiobook!
Niki Kapsambelis was born and raised in Boston, Massachusetts. She worked for several years as a newswoman for the Associated Press in New England, Los Angeles, and Pittsburgh. Her work has appeared in publications around the world, including the Washington Post, Los Angeles Times, and People magazine.
Callie Beaulieu, audiobook narrator, has been an actress for several decades. Classically trained, she is predominantly a theater actress, and her work has been seen around the country. She is a proud member of Actors Equity Association and SAG-AFTRA.