In 2008, Simon Fitzmaurice was diagnosed with Lou Gehrig’s disease. He was given four years to live. In 2010, in a state of lung-function collapse, Simon knew with crystal clarity that now was not his time to die. Against all prevailing medical opinion, he chose life. Despite the loss of almost all motor function, thanks to miraculous technology he has continued to work, help raise his children, and write this astonishing, life-affirming memoir.
Fitzmaurice, a husband and father of five, draws us deeply into his inner world. Told in simply expressed and beautifully stark prose, it is a journey into a life that, though brutally compromised, is lived more fully than most, revealing the potent power of love, of art, and of the human spirit.
Written using an eye-gaze computer, It’s Not Yet Dark is an unforgettable book about relationships and family, about what connects and separates us as people, and, ultimately, about what it means to be alive.
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