A frank, humorous exploration of interabled dating, love, and marriage Ben Mattlin’s wife, ML, recalls falling in love with his confidence and sheer determination. On one of their earliest dates, he persuaded her to ride on his lap in his wheelchair on their way home from an Elvis Costello concert. Thirty years later, they still travel like this from time to time, undaunted by the curious stares following them down the street. But In Sickness and in Health is more than an “inspiring” story of how a man born with spinal muscular atrophy—a congenital and incurable neuromuscular condition—survived childhood, graduated from Harvard, married an able-bodied woman, built a family with two daughters and a cat and a turtle, established a successful career in journalism, and lived happily ever after. As Mattlin considers the many times his relationship has been met with surprise or speculation by outsiders—those who consider his wife a “saint” or him just plain “lucky” for finding love—he issues a challenge to readers: why should the idea of an “interabled” couple be regarded as either tragic or noble? Through conversations with more than a dozen other couples of varying abilities, ethnic backgrounds, and orientations, Mattlin sets out to understand whether these pairings are as unusual as onlookers seem to think. Reflecting on his own experience he wonders: How do people balance the stresses of personal-care help with the thrill of romance? Is it possible that the very things that appear to be insurmountable obstacles to a successful relationship—the financial burdens, the physical differences, the added element of an especially uncertain future—could be the building blocks of an enviable level of intimacy and communication that other couples could only dream of? We meet Shane Burcaw, a twenty-three-year-old writer, who offers a glimpse of his first forays into dating with a disability. There’s Rachelle Friedman, the “paralyzed bride,” as the media refers to her, and her husband, discussing the joys and challenges of a new marriage and a growing family. And Christina Crosby and her partner, Janet Jakobsen, reflect on how Crosby’s disabling accident called for them to renegotiate their roles and expectations in their long-term relationship. What emerges is a candid glimpse into the challenges and joys of interabled love—from the first blush of sexual awakening to commitment and marriage and through to widowhood.
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“An urgent, deeply felt, and sometimes hilarious account of marriages that feel as obvious to those within them as they do bewildering to many people outside them.”
— Andrew Solomon, award-winning author of The Noonday Demon
“Inspired and inspiring…A very candid examination of the unique and daunting obstacles…as well as an anthology of compelling love stories.”
— Jay McInerney, New York Times bestselling authorBe the first to write a review about this audiobook!
Ben Mattlin is a freelance writer in Los Angeles. Born in New York in 1962 with spinal muscular atrophy, a congenital neuromuscular weakness, he graduated cum laude from Harvard in 1984. Author of the memoir Miracle Boy Grows Up, he is a frequent contributor to Financial Advisor magazine. His essays have appeared in The New York Times, Los Angeles Times, Washington Post, Chicago Tribune, and USA Today, and been broadcast on NPR’s “Morning Edition.” He’s also written for Self magazine and is a former contributing editor at Institutional Investor, the late Windows In Financial Services, Dealmaker, Buyside, and Individual Investor magazines. He lives in Los Angeles with his wife, two daughters, a cat, and a turtle.
René Ruiz studied music education at the University of Texas and has won acclaim in local productions and musical revues, including roles in West Side Story, A Chorus Line, and Forever Plaid. He also spent many years working for Walt Disney World as a featured actor, singer, and announcer.