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Featured in The Advocate, New York Times, Literary Hub, Autostraddle, and New York magazine's The Cut
This is a vital exploration of the ways society overlooks—and fails—young women with disabilities and chronic illnesses
Miriam’s doctor didn’t believe she had breast cancer. She did.
Sophie navigates being the only black scientist in her lab while studying the very disease, HIV, that she hides from her coworkers.
For Victoria, coming out as a transgender woman was less difficult than coming out as bipolar.
Michele Lent Hirsch knew she couldn’t be the only woman who's dealt with serious health issues at a young age, as well as the resulting effects on her career, her relationships, and her sense of self. What she found while researching Invisible was a surprisingly large and overlooked population—and now, with long COVID emerging, one that continues to grow.
Though young women with serious illness tend to be seen as outliers, young female patients are in fact the primary demographic for many illnesses. They are also one of the most ignored groups in our medical system—a system where young women, especially women of color and trans women, are invisible.
And because of expectations about gender and age, young women with health issues must often deal with bias in their careers and personal lives. Not only do they feel pressured to seem perfect and youthful, they also find themselves amid labyrinthine obstacles in a culture that has one narrow idea of womanhood.
Lent Hirsch weaves her own experiences together with stories from other women, perspectives from sociologists on structural inequality and inequity, and insights from neuroscientists on misogyny in health research. She shows how health issues and disabilities amplify what women in general already confront: warped beauty standards, workplace sexism, worries about romantic partners, and mistrust of their own bodies. By shining a light on this hidden demographic, Lent Hirsch explores the challenges that all women face.
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"I know what it means to work really hard to conceal the pain, struggle, and heartache in one’s life, to appear ‘fine’ just for the sake of other people. Because the reality of my life might have made others momentarily uncomfortable, I’d hide my own discomfort. It’s a hard habit to break and one that women have become adept at, one that is reinforced in the way our society treats, talks about, and engages with women who are ill or struggling. Thank you, Michele, for freeing us from the burden of being fine and shining a light on all the hidden pain women have been working so hard to conceal."
— Nora McInerny, podcast host for Terrible, Thanks for Asking and author of It’s Okay to Laugh
“Tell[s] an alarming story about how difficult it is for women to access quality care, particularly those women suffering from poorly understood autoimmune disorders.”
— New York TimesAn essential read for all, especially those wondering how to be a better support system for young women with chronic illnesses.
— Library Journal, Starred ReviewIt is an untapped, niche area for advice that Hirsch covers with relatability, grace, and empathy.
— Publishers WeeklyA well-researched account . . . At a moment when women’s experiences in the workplace have come to the fore, Hirsch’s eye-opening study of gender-based disparity surrounding illness will hopefully help spawn a similar reckoning for women’s health.
— Kirkus ReviewsIf you’re young and have a chronic illness, chronic pain, or disability of some sort, you should definitely read this book. If you don’t deal with any of those things—or know someone who does—you should absolutely read this book.
— Global CommentBe the first to write a review about this audiobook!
Michele Lent Hirsch is a writer and editor whose work has appeared online in the Atlantic, the Guardian, Smithsonian magazine, where she is a former weekly contributor, and Women Under Siege, where she is a former editor, as well as in print in Psychology Today, Natural Health, and the Bellevue Literary Review. She has also published poetry in a number of journals, and has been nominated for a Pushcart prize. With a specialty in science, gender, and health, she has been an adjunct professor of journalism at Manhattanville College, a guest lecturer at the New School, and a writer-in-residence at the New York Public Library. She is a member of Columbia University’s Neuwrite program, a selective group of writers and scientists.
Frankie Corzo is a film and voice-over actress and audiobook narrator. She obtained a BA degree in theater studies from Montclair State University.